All posts filed under: RA journal

My RA and CA and me

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If it weren’t for the third cancer hanging over my head, I would be a very happy soul. As it is I am just a happy soul. My roses are blooming. This is their big month and they are not disappointing.  Gardening and puttering through the various chores of my household reminds me of my housewife days. Good days. I aspire to the Hobbit life. Mellow and satisfying. Life in my home. I attend warm water pool classes at the Presbyterian Healthcare facility on Eubank. It is a long drive, but the classes are worth it. A comprehensive and aerobic workout that is manageable in the pool but not on land. Yesterday, I suddenly had a severe pain in my pelvic area that ran down the inside of my leg. Something new. Scared me. I thought about getting out but decided to lower my exercise level and see if it would pass. It did. I am no stranger to pain, back pain, joint pain and now this. Johnny Cash’s Peace in the Valley is sounding …

RA and Another Biopsy

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Back to the hospital for another round with the medical community. When I had learned that I would need an endometrial biopsy for uterine changes due to the breast cancer drug Tamoxifen and a D&C due to polyps, all I could think of was here we go again. I am six months out from a difficult hip replacement recovery. I am still recovering, stiff and sore. But I am in much better shape than I had been. I am in warm water therapy classes several times a week. My garden is a joy. Beautiful, productive and satisfying. My yard is home to rabbits, a squirrel, quail, roadrunner and a happy assortment of birds. By the end of the year I hope to be certified as a wildlife habitat by the National Wildlife Federation. My brain is finally working, and I am starting to write again. Then this. I had previously written a blog on getting more bad news. This really isn’t bad yet. I won’t know for another 10 days or so. Those with RA …

Back from my hip replacement

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My hip replacement didn’t turn out to be as smooth as I would have expected but my hip joint is fine and all the severe pain I had before the surgery is gone. It is a relief and makes the experience I had well worth the effort. The surgeon said my hip was warn out so I’m very glad he decided to do the surgery. During Thanksgiving week I overdid walking with the cane and sitting too long. So yesterday during my physical  therapy appointment, my therapist and I decided I needed to stay with the walker when I went out and use the cane for practice only at home. My pain had increased and I wasn’t doing as well. Back to the drawing board. Time to let the inflammation in the hip heal and to follow the rules.  And to rest more. I enjoy doing my assigned exercises. Resting more is hard. I have had two RA flares since surgery. One was in the Rehab center as they had skipped my methotrexate dose. Why? …

RA Hip Replacement

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I am hopeful that my summer long saga of pain and futility are drawing to a close. My surgery is two weeks away. I am grateful to Ruth and her practical approach to problems. It is reassuring to me. After all my worry and anxiety,  I know I will be fine. I have only one more item to check off my list. It is an appointment to see my surgeon’s PA. My dentist gave me a pass. I had no oral infection. My primary met with me and did his part. I participated in a two-hour hip class which was informative but also made me anxious. I met with the anesthesiology nurse. I passed all my labs. My worries My RA will become a worsening problem as I will be off Medrol and meloxicam starting Sunday. My RA feet are badly affected as are my ankles. My tendons in my legs are also a problem when I walk. My hands, wrists and shoulders are also problematic. After taking the hip class, I became concerned that …

My Military family

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This picture is one of few I have of my military career. It was a beginning. I am proud of my family’s service to our country. My dad was Army in WWII. My uncle was a bomber navigator. His plane was shot down over Africa and he was the only survivor. He was nursed back to health by Catholic nuns. Another uncle was stationed in Japan in the 50s. My brother was Air Force in the late 60s. I was an Air Force nurse during the same time frame. My children’s father was career Air Force. My son Steven was also career Air Force with several tours in Afghanistan. We were all proud to serve.

Remicade started

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                                                                                             Remicade is the new RA drug I am starting. September 2016. There is a loading dose, another dose two weeks later, another a month later. The regular schedule for me will be 8 weeks apart.  I have had the first two doses. It is given by infusion over two hours. The whole thing lasts about three hours. I haven’t had any reactions. Nausea is a common side effect. I have it with methotrexate so I am armed with a strong anti-nausea medicine and I am good. Last month was tough for me. Flare plus flu.I have been in a perpetual RA flare for three years. The only difference is that sometimes it is much worse than other times. It has been on the worse end of the scale for …

Me 2015

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Mary’s Arthritis started when I was newly diagnosed with RA and given the added bonus of two cancers in the same year.  But it was hard to sustain as my situation worsened. Coping took all my time. Learning to accept a shift in my reality took time. I had rarely been sick. I raised a family. As an RN I worked surgical cardiac critical care. I had been a nurse in the Air Force. I ran a photography business for 25 years and expected to work another 20. A reality shift took time. I now have this vision of the Hobbit living in the Shire. the Hobbit Life is compatible with writing and researching. I see that there is a lot of information out in the www.  However, a lot of it is the same old thing and much is dated or faulty.  RA is now considered 60% genetic. The rest unknown. The age group is now considered 35-65 with some younger and some older. I see a void in the information on Rheumatoid Arthritis. The facts …