All posts tagged: RA autoimmune disorder

Nurse Mary’s Patient Guide RA coming in November

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I have been working on this book for several years. It will be published in November in digital format as well as hard copy. The following is in the book. We should all be saints. Saints generally had tough lives so that is not what we want. We need to drop the fear, anger and hopeless feelings. Many of us have RA. We eventually toughen up and make our lives good ones, even with wheelchairs, canes and jar openers. We are not helpless. Sometimes it takes a while to understand this, but it will happen. Listen to the stories of others. I have read many. I am proud to be in their company as they are good role models for those of us who struggle with RA. This is the important part of the manual. It is your attitude, your commitment and your perseverance that will make all the difference in the world what your outcome, your quality of life will be. This is not easy. In fact, it may feel like just too much. …

Look Good Feel Better

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There is one good thing about chemotherapy. It is the Look Good Feel Better program. Fun. A time to share. Like Christmas. It is a two-hour appointment with a cosmetologist in a small group of women who have cancer. I had participated in a program five years ago when I was in radiation treatment for breast cancer. That appointment was at MD Anderson on Indian School near Kaseman. This session was at the Rust Cancer Center and was equally as good as the one five years ago. We are each given a cosmetic bag full of cosmetics that matches our skin tones. The bags come sealed and ready for us. At our places we each have a mirror and cosmetic wipes. Opening the bag is like Christmas. My bag had Chanel powder, lipstick and blush. Clinique foundation, Estee Lauder face cream and eye makeup, IT brow powder and a set of brushes, body lotion and sun screen. Pure joy. Our instructor walks us through the steps of taking care of our face during cancer treatment. …

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My surgery is over, and after an overnight hospital stay I am safely home. The doctor took many things out of me and she biopsied the rest. My doctor is a GYN oncologist surgeon, Sara Jordan. She is amazing and couldn’t be better. She feels that my serous uterine cancer, a rare subset of endometrial cancer and known for recurring, needs to be treated aggressively. I completed the first step, surgery. Prepping for the surgery was a challenge. I was required to spend Mother’s Day on a clear liquid diet. Then on Monday I was reduced to NPO status even though surgery wasn’t until one pm. I was running on empty so when I approached my preop, well-padded bed, I was relieved to get in. Stripped down like a hijacked car, clothed in the traditional blue gown, IV successfully inserted, I was ready for surgery. OR nurse stopped in. Anesthesiologist checked in. Dr Jordan reviewed the surgery again and introduced me to the second surgeon. Time seemed to accelerate. It was five minutes past one …