All posts tagged: Prednisone

My RA and CA and me

If it weren’t for the third cancer hanging over my head, I would be a very happy soul. As it is I am just a happy soul. My roses are blooming. This is their big month and they are not disappointing.  Gardening and puttering through the various chores of my household reminds me of my housewife days. Good days. I aspire to the Hobbit life. Mellow and satisfying. Life in my home. I attend warm water pool classes at the Presbyterian Healthcare facility on Eubank. It is a long drive, but the classes are worth it. A comprehensive and aerobic workout that is manageable in the pool but not on land. Yesterday, I suddenly had a severe pain in my pelvic area that ran down the inside of my leg. Something new. Scared me. I thought about getting out but decided to lower my exercise level and see if it would pass. It did. I am no stranger to pain, back pain, joint pain and now this. Johnny Cash’s Peace in the Valley is sounding …

Vitamin D deficiency and RA

The first doctor to test my vitamin D level was my oncologist. My level was 60 ng/ml. He suggested I lower my supplement amount. I lowered it to 2000U. My next test level was 16 ng/ml. He said,” Just keep doing what you were doing before you changed it.”  I raised my supplement to 4000U and my blood levels have been normal since then. Without a supplement, I was deficient in vitamin D. I have rheumatoid arthritis. Vitamin D deficiency is common in those with RA, type I diabetes and multiple sclerosis. Additional factors that influence vitamin D levels in those with RA include corticosteroid use. Drugs such as prednisone and Medrol can reduce calcium absorption and impair vitamin D metabolism. Hydroxychloroquine (Plaquenil) is also linked to malabsorption of vitamin D.  I am on both drugs and I do take the above supplement. Those with RA who have a deficiency of vitamin D will have difficulty concentrating, pain may worsen, fatigue and depression increase. Vitamin D is a hormone involved in bone and calcium metabolism. …

At the infusion center

I am taking a big chance. I went to the infusion center for a dose of Actemra. Actemra blocks the activity of the messenger cytokine, Interleukin-6. It was the  same routine: sign in at the reception desk, weight, vital signs, 20 questions. I am in a recliner with my feet up. IV started. Blood work. Tylenol and Benadryl to avoid side effects. I think this was the routine for all my infusions. My son, David, was with me. The Actemra infused without incident. I didn’t die. We were there for three hours. I had mixed feelings about this drug. It stemmed from several considerations. I have had a lot of bad luck with the biologics. The last was the TNFi Remicade. After two doses I became so ill I thought it was over. I felt weak and lethargic. No appetite. It lasted a month and I survived. I was reluctant to try another. Actemra was the last one available to me.  My RA Doc feels the drug is safer than no drug because the progression …