Year: 2018

RA, Movement and the Slippery Slope

I need to give you some heartfelt advice that is as close to a warning as I can get. My horrific experience this last year with a hip that was totally worn out put me in a dangerous situation that was as close as I had come to spiraling down the slippery slope to forever. I have rheumatoid arthritis. Those of us who have an autoimmune disorder understand what I mean when I say I have an overwhelming, incapacitating fatigue when I have a flare. Over the last five years I have learned to slow down when the flare signs start to blossom. To take care. So, this last year as the RA pain plus the pain in my hip increased, I did just that. I slowed down. Unfortunately, it wasn’t a flare that passed with additional Medrol and rest. It was a bone on bone raw joint pain that worsened with each passing day. I became debilitated. I was weak. I was living in pain. My doc provided OxyContin and tried very hard to …

Vitamin D deficiency and RA

The first doctor to test my vitamin D level was my oncologist. My level was 60 ng/ml. He suggested I lower my supplement amount. I lowered it to 2000U. My next test level was 16 ng/ml. He said,” Just keep doing what you were doing before you changed it.”  I raised my supplement to 4000U and my blood levels have been normal since then. Without a supplement, I was deficient in vitamin D. I have rheumatoid arthritis. Vitamin D deficiency is common in those with RA, type I diabetes and multiple sclerosis. Additional factors that influence vitamin D levels in those with RA include corticosteroid use. Drugs such as prednisone and Medrol can reduce calcium absorption and impair vitamin D metabolism. Hydroxychloroquine (Plaquenil) is also linked to malabsorption of vitamin D.  I am on both drugs and I do take the above supplement. Those with RA who have a deficiency of vitamin D will have difficulty concentrating, pain may worsen, fatigue and depression increase. Vitamin D is a hormone involved in bone and calcium metabolism. …

RA flare warning signs

Many of us who have RA have premonitions before the onset of a flare. For me, I start feeling chilled. Occasionally, I will check my temperature to see if I am coming down with something and my temperature will be 100.4 F. or maybe 99.6 F. It is a Rheumatoid Arthritis temperature. Additionally, my skin becomes itchy over joints. They are not always the same joints. Sometimes it is the knuckles and sometimes it is the wrists. I am also energetic and have several irons in the fire at the same time. As a flare draws nearer, I start losing my energy reserve. I feel like my battery is draining to a very low level. I knit more, and my baking becomes less creative. I feel duller. I would rather spend more time watching the Great British Bake Off and less time working on research for my current book. I am sinking. For me, it is time to start a Medrol dose pack and let myself slow down. I will still need to go to …