All posts filed under: RA Fundamentals

Morning time/Evening time with RA

I have figured out how to reduce the morning stiffness and pain of my RA. I do two things. First, I take pain medication. I wake up in the early morning to use the restroom. At that time, I take a dose of my pain medication. Before I go to bed, I put a dose in a little bowl on my night table. It is easy to access and I will know whether or not I had taken it.  Then I go back to sleep for about an hour or so. It relieves me of the pain that saturates my body in the morning. I no longer feel discouraged. I am ready for my day. The second thing I do is read the paper while I have my freshly brewed Starbucks French Roast. I have time to center myself as I work out the nighttime kinks.  I read the New York Times on my Kindle. I have a cover for my Kindle that also acts a stand for it (something like a picture frame easel). …

No more methotrexate

RA Dilemma Number Five There is another dilemma to face when you have rheumatoid arthritis. I was surprised by this one. After all, I have had RA for seven years and feel I have covered a lot of ground in that time. I know infection posed  a very high risk while taking RA meds. My mind thought flu or maybe pneumonia. This one started five months ago. Suddenly and out of the blue, my right breast developed a lesion and stated to drain. I felt feverish and went to see my oncologist who sent me to the breast surgeon oncologist down the hall because she was the one who had the ultrasound machine. She came in, introduced herself and looked at my lesion. She instantly knew that it was caused by necrotic breast tissue due to radiation for breast cancer. The radiated tissue gradually degenerates, expands until it pushes through the delicate breast skin and drains. It cultured positive and I was sent to the wound clinic. Eventually, it was determined that the only solution …

Seven year anniversary and infection

It was seven years ago this month. I was acutely ill with my first encounter of rheumatoid arthritis. My illness had not been given a name yet. A week before that I had seen the ER doc who started me on prednisone and who was ┬ásending me to the rheumatologist that I would see in about another week. I had very little sleep. A few hours a night at most. I was in excruciating pain. Life was not good. I can look back with a sense of relief. I no longer have the kind of pain that made me think I had broken glass shards in my joints. It took several years after my diagnosis for my RA to settle down. I never went into remission. My inflammation has always simmered. Methotrexate was my base. I finally settled into 25 mg subq once a week. It helped. After a few years my pain was never quite the same as it was originally. My feet became central to my discomfort. Custom orthotics and Dr Comfort shoes …