Year: 2015

A celebration of Recovery 10,000Waves

About as high as you can go up into the mountains in Santa Fe on the road to the Ski Basin is tucked a high-class Japanese Spa specializing in bodywork and skin care. Ten Thousand Waves.  My destination. Just what I need. I desperately need. My treatment choice is NOSE TO TOES. A Mother’s Day gift certificate from Chris and Katie. I live in Albuquerque and this would be my first road trip in three years. I gassed my Tin Lizzy, my 5-year-old Mini Cooper Clubman. Pepper white. Turbo. Added bottled water, spa directions.  Put on my winter jacket. Ready to go. Finally!  This is November. I headed toward I-25. Sunny day. Cool. I am on the road.  I am also on the recovering end of a devastating year. The year was 2013. Almost three years ago. I had been diagnosed with a severe rheumatoid arthritis followed by two different diagnoses of cancer. Surgery. Radiation for each. Pills forever. No relief for the RA until this year with the start of Orencia. It is a …

Orencia, After three months

I knew Orencia was working for me one week after my first infusion. Swelling in my hands, ankles and feet gradually disappeared until at three months I only have minor swelling in my hands. My daily dose of  RA(RD) pain has subsided to mostly feet pain, occasionally hand pain and spine pain. My improvement is amazing and  feels like a miracle. It feels like a miracle because I had been in uncontrolled RA pain since the Fall of 2012. Now in the Fall of 2015, the pain is almost gone. Thanks to Orencia my RA fog is lifting. I have more energy. And I will have a lot more energy as I move more. I am still on other medications for my RA(RD)*. I am also on Methotrexate injections. I take Plaquenil,  meloxicam, gabapentin.  My prednisone is 2/3 of original dose and decreasing. I go to the infusion center once a month. Time is about one hour. Occasionally, I have what feels like a rebound effect. About a week after the infusion, I have a day or two of inflamed joints. Then it’s …

Test Week

Since my Rheumatoid Arthritis and my two cancers were diagnosed in the same year, it is logical that  milestones occur the same way.  In one week I had  tests for my two cancers. On Monday I had a Thyrogen shot in the butt. The medication  acts like TSH, a hormone  that  normally stimulates your thyroid. ( $1400 each without insurance, $135 each with). Tuesday I repeated Monday with another shot. On Wednesday I went to nuclear med for a radioactive pill.  I am not radioactive. I feel like I am. I am also given two containers of MOM. The tech said it was a mild laxative. One tonight. One Thursday night. it wasn’t mild. I was also instructed to eat lightly. On Thursday I went to Radiology Associates of NM for a diagnostic mammogram. I do love this place. Friendly people. Coffee. Special cute patient gowns.  I felt that I would be fine, but I had the vivid memories of when I was not. So I still worried. Lucky me!  There was no sign of cancer. A …