All posts tagged: RA treatment

Remicade started

                                                                                               Remicade is the new RA drug I am starting. There is a loading dose, another dose two weeks later, another a month later. The regular schedule for me will be 8 weeks apart.  I have had the first two doses. It is given by infusion over two hours. The whole thing lasts about three hours. I haven’t had any reactions. Nausea is a common side effect. I have it with methotrexate so I am armed with a strong anti-nausea medicine and I am good. Last month was tough for me. Flare plus flu.I have been in a perpetual RA flare for three years. The only difference is that sometimes it is much worse than other times. It has been on the worse end of the scale for several …

What does ACR20 mean

  Have you ever thought about what the numbers mean when they say 50%ACR20 at 6 months? This simply says 50% of the group had a 20% response at 6 months. It means half improved by 20%.                                                                                                                                                  The ACR improvement criteria includes ACR20, ACR50 and ACR70. Meaning, 20%, 50% and 70% improvement. Easily enough to understand. I was reviewing a research paper on Orencia. I will be having my 8th infusion on Thursday. I was wondering if it was being effective enough and if I should keep taking it. The article had a chart for clinical responses in controlled trials. I reviewed the …

Orencia seven infusions

Next week I will have my 8th Orencia infusion. My time in the infusion center is about an hour. It is usually uneventful.  I am given benedryl, pepcid and another little pill I was told was for allergies. Blood is drawn for inflammation markers, C-Reactive Protein and SED rate, metabolic panel and CBC. Since I have been having the infusions, my neutrophils have become normal. My joint swelling has been greatly diminished. My pain levels have been reduced. I do have a weird cough. It is weird because when I enter a space away from home, I start coughing. It goes on for a bit and finally comes under control. Sometimes I feel like I have the flu, but I don’t. I still don’t have as much energy as I would like. I do have some RA problems. Still I am better than I was before the Orencia. I went to a number of online communities to see what others were experiencing with Orencia. There were many miracles. Good results. There were some with the …