All posts tagged: Blogging 101

Adding a second autoimmune disease to RA

I have long  appointments with my rheumatologist. She is thorough and listens to what I say. She does think out loud which may be disturbing to some. I understand where she is going and I understand she is throwing out possibilities not absolutes.  I had a number of revelations but a big one was the possibility of adding polymyalgia rheumatica to my RA diagnosis. For the last six weeks I have been having excruciating pain in my left hip and my whole pelvic girdle. I was also having excruciating pain in my left shoulder. Life was  difficult. I had no idea what was going on. I have a protocol to increase my medrol for flares.  I did. Medrol did provide relief. Once I was done with the medrol my pain returned. My doc listened, examined. She ordered x-rays. She mentioned the possibility of sending me to an orthopedic doc. She mentioned             polymyalgia rheumatica. Then we moved on to other issues. Polymyalgia rheumatica affects those over 65 years. It affects the pelvic girdle and …

Methotrexate NSAID or DMARD ?

I can now count myself  as one of the few who has read the package insert for methotrexate. I am researching RA drugs for my book.  I give myself injections of 25mg methotrexate weekly. I was opening a new box and preparing to give myself an injection.  Impulsively, I decided to read the insert. Methotrexate has become the gold  standard for RA treatment. It has been one of the few drugs to help relieve my symptoms. Imagine my surprise when I read the following. Medication guide insert with boxed  methotrexate; “Although methotrexate clearly ameliorates symptoms of inflammation (pain, swelling, stiffness), there is no evidence that it induces remission of rheumatoid arthritis nor has a beneficial effect been demonstrated on bone erosions and other radiologic changes which result in impaired joint use, functional disability, and deformity.” So since it doesn’t stop RA progression how can it be classified as a DMARD, Disease Modifying Anti Rheumatic Drug?  Shouldn’t it be a NSAID,  Non-Steroidal Anti-Inflammatory Drug?

MY RA Book

  I am making progress! I started writing a book on RA a year ago. I have deep experiences as a patient. I have read extensively. I have written extensively. I have read much about other people living with the challenges of RA.  However, my book is starting to look like a textbook. This is not my intention. Fortunately for me I read a short book on organizing a kindle non-fiction book. It all made sense and I am now ready to go. I plan to have my book up and ready by midsummer. Unfortunately,  my RA is on a steady progressive course. I have tried most of the drugs on the list for RA and only a select few work. I am not one of the fortunate ones who make stunning progress with the biologics. I am grateful that they do work for some. Still I have to plod along my own RA path. My book will put together the RA basics for a grounded base. It will discuss the role of advocating for yourself as vital to …