All posts tagged: RA attitude

RA Solutions Gardening

I have the misfortune of having a painfully, progressing rheumatoid arthritis. My RA started when I was older. An older onset RA tends to be more severe like it is trying to make up past time. After eight years, most of my joints are affected. I have neuropathy in my feet and joint damage in my hands and feet. I walk with a cane when I’m out and frequently use a walker to get around at home. I am disabled. It has taken me a long time to admit it. But the upside is that I can make changes to my life so that I can manage in spite of disability. The long cozy nights by the fire have given way to the longer days of spring. It is time to be out in the garden. My roses were amazing all through May. My clematis is covered in large dark blue flowers. Hosta fill one corner of my patio. All my herbs have renewed themselves. I enjoy the fruits of past garden labors and am …

No more methotrexate

RA Dilemma Number Five There is another dilemma to face when you have rheumatoid arthritis. I was surprised by this one. After all, I have had RA for seven years and feel I have covered a lot of ground in that time. I know infection posed  a very high risk while taking RA meds. My mind thought flu or maybe pneumonia. This one started five months ago. Suddenly and out of the blue, my right breast developed a lesion and stated to drain. I felt feverish and went to see my oncologist who sent me to the breast surgeon oncologist down the hall because she was the one who had the ultrasound machine. She came in, introduced herself and looked at my lesion. She instantly knew that it was caused by necrotic breast tissue due to radiation for breast cancer. The radiated tissue gradually degenerates, expands until it pushes through the delicate breast skin and drains. It cultured positive and I was sent to the wound clinic. Eventually, it was determined that the only solution …

Surviving Food, Nutrition and RA

This is the first few pages of the nutrition section in my up coming book Self-Managing Rheumatoid Arthritis. Surviving Food, Nutrition and RA We all know that good nutrition is an important part of staying healthy. Most of us have limited knowledge on what constitutes eating well. Our problems are many when we try to figure this out. What is good nutrition? How does it fit into our family style? How do we manage when we have pain and fatigue? How do we manage when our budgets are limited?  To complicate matters, each of us is unique both in body make-up and in our responses to our environment. We need diets or food plans that work for us individually. It is a given that a good diet will help you manage your RA. Good food will help. You might already realize your particular dietary needs. Some will do better on a vegetarian diet. Some will do better without dairy. Many will thrive on a Mediterranean diet or an anti-inflammatory diet. Some are gluten intolerant. Some …

Life is good

Christmas is surrounding us. Thoughtful considerations given. Small kindnesses. Music. Good chocolate. Desserts. Hugs. Packages in shiny paper. And the knowledge I am cared for. I feel fortunate. I have loved ones to share the holidays and although I am a little wobbly at times, I am able to do my favorite activities for the season. I have had past years where I have felt frightfully alone. I have been fearful for my life. I have been fearful for my future. But now my heart has settled down. I know better who I am.  I feel satisfied with myself. I accept my place in the world and I am grateful for it. Life is good. My son and I took Francis for a picture with Santa at Petco. We were first. Francis growled at a young French Bull dog and then sat on Santa’s lap like they were old friends. Another good memory.

Our core and why we need it

  Our core is our foundation. It is the stabilizer muscles. It links the upper body with the lower body. Our core  keeps us upright, agile, and able to perform all the daily tasks that constitute our lives. The core muscles are located in our trunk. Our core is a muscular corset that keeps our organs inside, our backs upright and our bodies able to do their job.  It lets us twist and bend.  A strong core will keep us in good shape as we age and when we are ill. With a strong core we are less likely to fall as we get older. We are less likely to have back problems. We use our core when we do housework and when we play golf. We use our core when we play with our children and when we have sex. The quality of our activity depends on our core. The core comprises groups of muscles with strange sounding names. The rectus abdominis, transverse abdominis; the obliques, front and side,  lower lats, erector spinae, running …

My favorite RA Book

When I had a severe episode of RA in December 2012, I was in so much pain that coping day to day was my only focus. As the diagnosis of RA was made clear and treatment commenced, I had to learn as much as I could. I also needed to understand my situation. I turned to the best book I could ever recommend to someone who is new to RA. It is called The First Year Rheumatoid Arthritis by M E A McNeil The book explains a lot. And equally important it helps a person shape a healthy attitude toward  RA It helped me take charge of my illness in a healthy, positive manner. Another pain free day. I am in paradise!

Mary Man's RA Journal Icon

Disabling RA

One of the big pleasures I have is watching the full moon make its way up and over the mountain. I see it from my patio doors as I am making dinner. Lately, it not only is a big, full moon but also a beautiful, warm yellow. When I first see it, the moon  is just peering over the top edge of the mountain. Then it seems to sit on the edge of the mountain top just before continuing  its journey up into the night sky. A moment in time. I was thinking of good things to distract from the pain I have in my joints and the nagging fear in the back of my mind that I am becoming more disabled with each passing day. My RA was diagnosed seven years ago in January. Since then, I have had three cancers and a hip replacement. Most of that time I have been on methotrexate, mostly injectable. It has slowed the progress of the RA. It could be worse. I’ve been on almost all the …

RA, Mojo and writing a book

My mojo  means that I have creative energy and an optimistic outlook. When I  have those things, I am good to go. I can write. I can read complex articles. I am living in a good space. Happy. I have found my voice for my RA book. My writing had stalled at 75%. Dead in the water. It just wasn’t where I wanted to go. I finally figured it out. With some modifications I will have it running again. From time to time I will include samples from a chapter.   Chapter Five The Character of RA Learning you have a a diagnosis of rheumatoid arthritis, starts you on a journey of a lifetime. When I was diagnosed with RA, I read a wonderful book that proved to be a guide for me on my journey. One of the things I came to understand was that I was in charge of me and I was in charge of managing my own RA. My responsibility. It is important to understand your rheumatoid arthritis and it is …