Month: April 2017

MY RA Book

  I am making progress! I started writing a book on RA a year ago. I have deep experiences as a patient. I have read extensively. I have written extensively. I have read much about other people living with the challenges of RA.  However, my book is starting to look like a textbook. This is not my intention. Fortunately for me I read a short book on organizing a kindle non-fiction book. It all made sense and I am now ready to go. I plan to have my book up and ready by midsummer. Unfortunately,  my RA is on a steady progressive course. I have tried most of the drugs on the list for RA and only a select few work. I am not one of the fortunate ones who make stunning progress with the biologics. I am grateful that they do work for some. Still I have to plod along my own RA path. My book will put together the RA basics for a grounded base. It will discuss the role of advocating for yourself as vital to …

RA, Biologic Medication and the numbers

Reading the fine print on a medication insert is not done by many of those with RA. I suspect the big reason is the amount of time it would take to understand all the information or even to understand the information of value to you. It does seem like too much work. But there is a time to buckle down and read the inserts. I am at that time. I need to make new decisions with my Rheumatoid Arthritis(RA) treatment. I have tried three of the biologics. One didn’t work. One worked about 50% for nine months and then left me to a bad flu and a worse flare. The third just made me sick. I felt like my life was being sucked out of me. It was not a good feeling to have. For the last six months, I have sustained myself with methotrexate injections coupled with hydroxychloroquine, meloxicam and methylprednisolone. I love methylprednisolone (Medrol). It makes me feel better. I morph from a cripple in excruciating pain into someone feeling almost well. My …

Gardening and RA

April is a great month for gardening in New Mexico. Sunny, 70’s. Roses blooming. Oklahoma Red bud a riot of color. I am enjoying every bit. This week I planted a Lady Banks rambler on my back fence. There have been times when I never thought I would be able to kneel and happily dig in garden dirt again. Right now I can and I am very happy. In the four years since I was diagnosed with RA, I have learned to modify activities of my life. In the garden I have a kneeling pad for my knees. I buy the smaller size plant so I don’t need to dig a bigger hole and don’t need to haul as much garden soil. I have learned not to buy more than one or two plants at a time. And most importantly, I will relax with a cup of coffee and a book as a rest when my planting is done. The Lady Banks Rose is white and luscious. This is an old rose that was originally brought …