All posts filed under: Resources

RA Web Sites

Like everyone else with a serious diagnosis, I need to know more than the few words my doctor tells me.  And like everyone else, I search the internet. The internet is jammed full of information. However, sorting through it can be a challenge. Some of the sites  give the same standard information. Some of it is dated information. Some of it includes assumptions. Still it is possible to find helpful, reliable sources. Here are some I find helpful.  Johns Hopkins Arthritis Center will give you all the scientific information that you will need.              http://www.hopkinsarthritis.org/arthritis-info/rheumatoid-arthritis/ PubMedHealth The link:    Rheumatoid Arthritis  at the US National Library of Medicine, the world’s largest medical library.  Always a valid and helpful resource. RA Warrior A community support site that relates the experiences of those with RA, offers a great deal of helpful information, and current  discussions on RA. It is a big site and well worth a visit. Kelly Young is the author.  Visit the RA Warrior at     http://rawarrior.com/  WebMD This is an amazingly helpful site. …

Wrapping your head around RA

When I was diagnosed with RA, I was too sick to understand the long term implications. I was grateful at the time to put a label on the devastating attack on my body. I love books and have always looked to books for solutions as well as for pleasure. Soon after my diagnosis, I purchased the book, The First Year Rheumatoid Arthritis by M.E.A. McNeil. With RA there is a major shift in your life. What to do? How to cope? What to think? It is overwhelming. This book set me on the right course. It helped me organize.

Maneuvering the medical system

  Treat Me, Not My Age is written by geriatrician, Mark Lachs, MD*.   The book discusses Why you should be an informed patient  How to become  informed The pitfalls of being an aging patient in our current medical system How to take charge and  maneuver the medical system maze There are doctors who do nothing for  aging patients even though appropriate, aggressive treatment may improve the life and well-being in the elderly the same as someone younger. over treat aging patients, not understanding the patient’s health situation. talk down to an elderly patient and blow off patient’s concerns attributing them to aging problems instead of symptoms of disease. Over 98,000 Americans die each year due to medical errors. Many more are injured. The average primary doctor has about 2000 patients.  Dr. Lachs makes clear the perils we face as patients. He then offers  a guide to managing medical issues that we encounter as we age. He believes “…the most important primary care provider is you.”  It is your life. You are the one who needs to keep track of what …