All posts filed under: Resources

RA Web Sites

Like everyone else with a serious diagnosis, I need to know more than the few words my doctor tells me.  And like everyone else, I search the internet. The internet is jammed full of information. However, sorting through it can be a challenge. Some of the sites  give the same standard information. Some of it is dated information. Some of it includes assumptions. Still it is possible to find helpful, reliable sources. Here are some I find helpful.  Johns Hopkins Arthritis Center will give you all the scientific information that you will need.              http://www.hopkinsarthritis.org/arthritis-info/rheumatoid-arthritis/ PubMedHealth The link:    Rheumatoid Arthritis  at the US National Library of Medicine, the world’s largest medical library.  Always a valid and helpful resource. RA Warrior A community support site that relates the experiences of those with RA, offers a great deal of helpful information, and current  discussions on RA. It is a big site and well worth a visit. Kelly Young is the author.  Visit the RA Warrior at     http://rawarrior.com/  WebMD This is an amazingly helpful site. …

Wrapping your head around RA

When I was diagnosed with RA, I was too sick to understand the long term implications. I was grateful at the time to put a label on the devastating attack on my body. I love books and have always looked to books for solutions as well as for pleasure. Soon after my diagnosis, I purchased the book, The First Year Rheumatoid Arthritis by M.E.A. McNeil. With RA there is a major shift in your life. What to do? How to cope? What to think? It is overwhelming. This book set me on the right course. It helped me organize.

what website has the best RA info

  Maneuvering the tangled jungle of internet information can be extremely frustrating. There is a lot of misleading information by reputable sites.  A lot of information is summarized and then vaguely  jumps to  faulty assumptions.  All this adds to our confusion.   Reputable resources may vaguely summarize information for patient information sheets. The American College of Rheumatology is a good  resource for general information about  RA.  However, patient information sheets are generalized and vague.  I wonder if the science writers think we are too dumb to get the real stuff.  A lot of our confusion about RA stems from getting peace meal information that is vague.  Rheumatologists actually do use the 2010 Rheumatoid Arthritis Classification Criteria to assist diagnosis.  Why don’t they tell us about it?  It sounds pretty black and white to me.  PubMed comments on the criteria show how the new criteria is the game changer tool to diagnose RA. The classification tree of the 2010 Rheumatoid Arthritis Classification Criteria is worth checking out. Johns Hopkins Arthritis Center is a respected source of Rheumatoid …