All posts tagged: Pain

RA flares without the biologics

I am living through my days without methotrexate. I am not on any of the biologics. Hydroxychloroquine is no help and has been set aside. At first, I felt left alone in the world without armor.  Would a flare become so severe that I would spiral down and down into total pain and immobility as I had in 2013? That was my fear. For years, a low level of pain humming in the background has kept me company. I have a degenerating spine. There are long fancy words for what has attacked my spine. Plainly said, I have a bad back. I could say I inherited it  from my dad. I am accustomed to pain. Now I have RA. Over the years I have learned to ignore the humming pain. However, there is a tipping point after the start of a flare where something needs to be done. As a flare starts  pain grows louder in the small joints in my feet. The rest of my feet ache. My left ankle develops sharp pain making …

My Journey with Orencia

I published this series of posts during the year I was on Orencia. The following are my experiences. August 2015-August 2016 Tomorrow I have my first infusion of Orencia. It is a biologic used to relieve symptoms and slow the joint destruction of Rheumatoid Arthritis. I have just read the medical insert for Orencia. The studies are hopeful. (Having statistics in college finally pays off. The infusion  will take 30 minutes. My son is going with me. He is good company and a morale booster. In two weeks I will have another infusion. At one month I will start infusions monthly. I will be happy to have the infusions as long as they help. I have read endless online comments of those who have taken Orencia. They have met with success for the most part. Success means less pain, less disability. It means more energy. It means more life. Orencia , after three months I knew Orencia was working for me one week after my first infusion. Swelling in my hands, ankles and feet gradually …

I’m Back

I have completed chemotherapy and I have completed radiation. At this point I think I am cured. It’s been a long year. I am grateful as I have friends who are not as fortunate. In addition to  being diagnosed with another cancer this year, my computer died. The new one arrived Friday. It is nice to be up and running again. My RA doc has moved on to the VA. She is going to be working on research projects as well as seeing patients. I have followed her as I am a Vet.  She is happy. She had spent several of her student years working at the VA and appreciates its culture. She has ordered Voltaren Gel for the pain I have in my feet. The pain is a problem for me when I go to bed. Voltaren is a topical gel of Diclofenac, an anti-inflammatory. It arrived this morning. I will let you know if it works for me. Albuquerque has been one of the cold spots in the nation. It’s been down to …

How my hair came to fall out, more experiences with cancer treatment

I remember when I learned about my latest cancer (#3).I knew that once again my life would be consumed by all things cancer. After major comprehensive surgery (they took almost everything out), it was time to settle into chemotherapy. My oncologist, Sara Jordan, had explained the reasoning behind the treatment she proposed. Chemotherapy would be part two after surgery and before vaginal radiation. I figured she might be able to cure me which sounded appealing and worth the effort I would be expending. This picture shows my hair, but it was taken after surgery and before chemo. The chemo was to be a commonly used combination of Taxol and Carboplatin. Six sessions in 21-day cycles. Hair loss is definite and is estimated to be 2-3 weeks after initial infusion. This allows a little planning time. My hair stylist, Audrey, cut my hair into a short pixie. Much better than a butch or a clean shave. The second part of the plan was to shave it when it started falling out. About day 19 after the …

My RA and CA and me

If it weren’t for the third cancer hanging over my head, I would be a very happy soul. As it is I am just a happy soul. My roses are blooming. This is their big month and they are not disappointing.  Gardening and puttering through the various chores of my household reminds me of my housewife days. Good days. I aspire to the Hobbit life. Mellow and satisfying. Life in my home. I attend warm water pool classes at the Presbyterian Healthcare facility on Eubank. It is a long drive, but the classes are worth it. A comprehensive and aerobic workout that is manageable in the pool but not on land. Yesterday, I suddenly had a severe pain in my pelvic area that ran down the inside of my leg. Something new. Scared me. I thought about getting out but decided to lower my exercise level and see if it would pass. It did. I am no stranger to pain, back pain, joint pain and now this. Johnny Cash’s Peace in the Valley is sounding …

RA Hip Replacement

I am hopeful that my summer long saga of pain and futility are drawing to a close. My surgery is two weeks away. I am grateful to Ruth and her practical approach to problems. It is reassuring to me. After all my worry and anxiety,  I know I will be fine. I have only one more item to check off my list. It is an appointment to see my surgeon’s PA. My dentist gave me a pass. I had no oral infection. My primary met with me and did his part. I participated in a two-hour hip class which was informative but also made me anxious. I met with the anesthesiology nurse. I passed all my labs. My worries My RA will become a worsening problem as I will be off Medrol and meloxicam starting Sunday. My RA feet are badly affected as are my ankles. My tendons in my legs are also a problem when I walk. My hands, wrists and shoulders are also problematic. After taking the hip class, I became concerned that …

On becoming the bionic woman

I wonder how many of us are walking around with replacement parts. Joint replacement has become common and it is successful surgery. I have several friends who have both knees replaced or both hips replaced and they are fine with it. And now, I am about ready to embark on my first joint replacement. My left hip will be first on the chopping block. This is a bad visualization. I am trying hard not to think about what the surgeon will be doing. It is scary and gruesome. A Frankenstein thing. Instead, I am focusing on the bionic woman thought. I will be in much better condition once I complete the rehab process. I will have a fabulous new joint. Won’t I be lucky? I will. I have spent the summer in extreme pain. My doc had a tough time identifying my hip issue. After all, my hip had good range of motion without pain. An MRI revealed my hip deteriorating badly plus a bad labral tear with pieces loose in the joint. My pain …

Real Life and RA

Having a debilitating, chronic disease makes me much more aware of others who struggle to have a normal life with a chronic disease. For those who have RA,  pain is a central issue. The exhaustion that comes with inflammation is also the issue. Life becomes a daily struggle for those who wake up in pain, and who need to make that pain manageable so they can carry on with their daily duties of children and/or work.  Depression is common among those with RA. Easy to see why. I am not easily depressed. I can see too many of the little pleasures of life that make it worth the downside. But there are moments when the struggle to put pain in its place becomes just too much to live with. That is a big, clear signal for a time out. I can have a time out and so can many who have family to take the children or have a job where hours are flexible. But there are many who are  scraping by so need to …

Being in a funk with RA

I have to admit I am in a place where the mind is willing but my RA body is not. I have been living with extreme pain for a month and I have been trying to manage it myself.  Yoga, pain medicine on schedule, more medrol.  All for naught. I had sent an email via My Chart to my rheumatologist but I had no response.  It seems to be a situation where I have no choice but to call her.  Last I talked with her she was mad at me because I brought the statistics on Actemra to her. So asking her for help is a stretch. However, I have gone through my resources and they are not enough. So I will call. Living with chronic pain is bad enough. The worst of it is how immobilizing it is. My hip joints are deteriorating as is my spine. The worst of the pain is in my left hip and I bet it is where the sciatic nerve passes by the hip joint. I am okay …

The Classic Symptoms Of RA

The Classic Symptoms Of RA Symptoms may vary during a day and from day to day and from person to person. The unpredictability of symptoms makes daily activities harder to plan. The following are symptoms common to Rheumatoid Arthritis. Pain is a hallmark of rheumatoid arthritis. Pain comes in many forms in the same person. It is sharp as the edge of broken glass. It is burning. Aching. It is incapacitating and it can be unrelenting. Consuming. Sometimes it is excruciating. The middle joints of the fingers, the knuckles, wrists, the joints in the toes and the feet are affected. The shoulders, elbows, knees and ankles, and the hips become affected. The cervical spine is frequently affected. The lumbar and thoracic spines can be affected but less commonly. Pain may make it hard to get out of bed in the morning. Pain may increase as the day wears on. Pain can wake you in the middle of the night. The trouble is that the pain is not isolated to one spot. It encompasses many joints …