All posts tagged: RA Fatigue

RA Pain, Coping and mother’s advice

  Beginning with the first symptoms of my rheumatoid arthritis (RA), I have lived in daily pain. It has been over four years. It has been a long time. Rheumatoid arthritis is an autoimmune disease. My body is on a suicide mission to destroy the linings of  the movable joints in my body. It is a scary disease in that it is unpredictable and it is progressive. I spent the first two years with severe fatigue/malaise. And it was as bad as the pain. This malaise is caused by cytokines, products of inflammation. Cytokines circulate in my bloodstream spreading RA damage. Add that to a high level of pain and it can be overwhelming. I wake to stiff, painful joints. In the morning as I walk painfully down to the kitchen to make coffee, there are times when I have become angry and tired of it all. I start the day in pain and I end the day in pain. It is too much. My feet are becoming deformed and I find it difficult to …

Gardening and RA

April is a great month for gardening in New Mexico. Sunny, 70’s. Roses blooming. Oklahoma Red bud a riot of color. I am enjoying every bit. This week I planted a Lady Banks rambler on my back fence. There have been times when I never thought I would be able to kneel and happily dig in garden dirt again. Right now I can and I am very happy. In the four years since I was diagnosed with RA, I have learned to modify activities of my life. In the garden I have a kneeling pad for my knees. I buy the smaller size plant so I don’t need to dig a bigger hole and don’t need to haul as much garden soil. I have learned not to buy more than one or two plants at a time. And most importantly, I will relax with a cup of coffee and a book as a rest when my planting is done. The Lady Banks Rose is white and luscious. This is an old rose that was originally brought …

Four years with RA

It was four years this month that I was officially diagnosed with Rheumatoid Arthritis. Learning to accept my situation and learning to manage my disease was not easy. Pain is constant. It just varies in intensity. Fatigue is overwhelming and was constant the first few years. The RA process of medication trial and error was discouraging. Medication side effects were hard to tolerate. Underneath it all, the knowledge of living with a progressive disease was disconcerting. Add to the mix, I was diagnosed with stage three thyroid cancer and breast cancer the same year that I was diagnosed with the RA. Both included surgery and radiation treatment. Yet here I am four years later. I am still struggling but I am surviving and maybe thriving. I wake in pain. I go to bed in pain. Pain is discouraging and even depressing. Many of my joints are affected by RA. Fingers, toes, feet and hands, elbows, wrists, shoulders and jaw. So, I am blanketed in pain. I take meloxicam and methylprednisolone for inflammation. I take gabapentin …