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RA Fog

Last month I finally filled out the form for the Arthritis Foundation, made out my $20 check and mailed it in. A few days ago I received my first copy of Arthritis Today. I was surprised and impressed. It is a small magazine, not cluttered by pages of ads.  The focus of the magazine is to be helpful to those with arthritis. It is. There are interesting and helpful articles.

I enjoyed the article about Clark Middleton. He was the DMV guy on the series the Blacklist. Funny character. He had juvenile idiopathic arthritis as a child. He had many joint replacements and continues today with methotrexate and a biologic. His is the story of a man who has accomplished a lot while coping with a debilitating disease.

The article on Brain Fog reminded me of methotrexate fog. That was a hurdle for me as I settled into methotrexate treatment. I was a sharp business woman. I had to be in order to stay in business for over 25 years. I had always done my own taxes and was always satisfied and more importantly  so was the IRS.

I don’t think anyone realizes just how hard it is to keep anything straight when you have a chronic disease like RA. Paying bills on time. Doing all the routine processes we hardly think about can be a real challenge. I will never forget how I was in Brain Fog big time when I filed my 2013 taxes. All I can say is that my 2013 tax return was a totally dumb tax return. On hindsight I was amazed that I had filed it. It took me six months to straighten it out with the IRS. Phew. I do understand the brain fog and inflammation thing. I try to be careful, but I just don’t totally trust myself anymore. I loved this reader’s tip by Michelle. “Yes I have brain fog! What do I do to help? Oh wait! I forget.”

There is more but I feel the creeping gray of fog slipping into my cerebrum. I think I will go make lunch.

RA doctor visit

Here in sunny Albuquerque we are expecting the thermometer to hit 104 this week. It is that time of year where hanging out in the house is a good idea. 90 is livable but once it passes 92, it is just too hot. My son is keeping the garden watered so we won’t have any plants that succumb to heat stroke.

I finally connected with my RA Doc.  After x-rays, blood work and an exam, she can see the excruciating pain that I am in. She is thinking hip replacement. Tomorrow I have an MRI. I have an appointment with an orthopedic surgeon early in July. In the mean time she ordered Percocet and said to call if I needed more. I guess this is the holding pattern until the next step is reached.

I am amazed that the pain is so immobilizing. I am still trying to do some restorative yoga, but there is something not moving the way it should so I am going with forward bends and shower wall push ups. Maybe downward Dog.

My doc wants me off Medrol. I am at 8 mg and will go to 4 mg tomorrow. It is possible  I have avascular necrosis of the hip. Probably due to four years of prednisone. Wish she had told me that this was a possibility.

I looked avascular necrosis of the hip up and found the People’s Pharmacy and an extensive list of people who have symptoms just like mine who were also prescribed prednisone.

As my Medrol is decreased the burning in my hands has gone to pain in the hands. My feet are numb except for my middle toes which are in pain. I will miss the steroids.

My RA inflammation is four years and counting.

Yoga is for everyone especially for those with RA

I saw this video on YouTube.  An introduction to Iyengar Yoga.     Thought that it is the style yoga that I had learned. It would be helpful and satisfying to those who know nothing about the practice of yoga.  I like the tone and the different sizes and ages of people.