All posts filed under: RA Solutions

These are the things I do to hep me cope with my RA.

My RA 10 minute exercise plan

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  Repeat after me Move! Historically, I have always been a mover: swimming laps, walking a big dog, yoga classes, physically active job, cancer rehab, silver sneakers core, tai chi, gardening, etc.  RA changed a lot of that. I reached a point where I was so sick I could hardly move. I moved only because it hurt more when I didn’t move. I don’t think anyone understands how hard it can be just to get dressed. Running errands is exhausting. Going to the gym, just a dream for the moment. I cannot walk far  as I have bad ankle and foot damage. Going to the gym, for now, feels like planning a trip to the moon. However, I know that muscle strength, flexibility, aerobic conditioning are vital to RA stability. And it needs to happen every day. When I feel better, I swim laps. In June it was a quarter mile free style. Felt good.  Presently, that seems overwhelming. Not the swimming but the dynamics around it. I have devised a ten minute exercise set …

Managing RA and commitments

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I made a big accomplishment recently that makes me very happy.  I  completed my role as planning committee member for Cancer Support Now’s 4th Annual Long-Term Effects of Cancer Survivorship Conference.  The event was successful. I could see it being valuable to attendees just like it was for me last year.  I had loved it. Felt grateful for it. I had wanted to be involved in it. Being involved had meant crossing town at 5 pm for planning meetings.  Crossing town just at the time when the pain and the fatigue of RA increased for me was a big one. I made the decision to go. It was the first big commitment I had made since my odyssey of two cancers and a diagnosis of progressive RA began. I made the meetings. The conference was coming together. The Monday of the event I woke to severe pain in all my joints. It was not good. The problem with RA is that it is totally unpredictable. Severe fatigue or severe pain are random occurrences.   The pain kept …

Exploring and moving

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Do you really want to spend any time walking on a treadmill or  riding a stationary bike?  Indoors? Sure, it’s great if you live in Watertown, NY and you get socked in with snow. It’s also good if you live in a bad neighborhood.  But if you live in Albuquerque( ABQ to us), there is more to be had.  Walking with your camera in the great open spaces. I am a professional photographer. I have all the big expensive cameras with the impressive lens. I also have a seriously progressing Rheumatoid Arthritis. I have been lying low with pain and inflammation. Finally, I am ready to move again.  Baby steps.  Out walking trying to get my legs again, I take an old digital Canon. Fast. Satisfying. Easy. I would never have seen these Sand hill Cranes when walking on a treadmill. I love these guys. Makes my heart happy to see these 4 foot visitors from the North. One of the oldest surviving birds, they mate for life and care for their young for a year. …

The challenge of Feet

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My rheumatologist sent me to a podiatrist, a foot doctor.                 Charming man. Once a client of mine.        X-rays were ordered, the podiatrist way. Standing. Weight bearing. Three views each.  For the third view I climbed steps  and was x-rayed  at foot level.   A  much better test than the standard foot  x-rays. Results: persistent degenerative changes with in the feet bilaterally. I admit that this was expected. What happens next?  My doc said surgery is not the answer.  As my feet get worse he feels steroid injections would be helpful. Now it is important that I wear shoes that fit  well and offer good support.  I should also wear special inserts (Motion Control performance insoles by Prothotics). I got the inserts first.  They are so much better than anything you will find at Target or Walmart. They have support for feet in areas that are thinning in RA. He suggested our New Balance store or REI.  New Balance was closer. They fitted the inserts and fitted …

Have you ever felt stranded?

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Have you ever felt stranded?  Sick …Painfully so…But did not know who to call. Maybe too sick to figure it out. This happens a lot to those of us with autoimmune disorders. I am seeing many doctors, each a specialist who oversees a section of my body.  For me, I have a rheumatologist, an oncologist, an endocrinologist, an ENT Doc, an internist and a podiatrist. However, there is no one who looks at the total me. This week I am in trouble. Things just are not working well enough. The protocols that are to be followed when I am in trouble are not working.  What do you do when your painful issue does not fall into the neat little slot of a specialty? When you are plainly worried that all is going to hell?  Who do you call? Unfortunately, not GHOSTBUSTERS. Here’s what I did. Then I will tell you about my remedy for my next crisis of indecision. It was decided through C-T scans and visits to my endocrinologist and an ENT Doc that …

RA tools-Massage

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In the proper spirit of being the manager for my RA, I thought about what tool I could use to help manage my RA. Top on my list was massage:  Helps the pain-tense muscles to relax. Stimulates the lymphatics. And best of all is a thoroughly relaxing experience. Today I had an hour massage at ABQ Medical Massage Therapy. It was an Oncology Massage. I have several cancers as well as RA and they do open a few doors. The massage was given by Sean, a senior student. I was directed to a quiet room. Asked if the room temperature was okay. Offered water. And directed to disrobe to my comfort level. I go to my panties. Lay down on the table which was warm and cozy. Covered up with a sheet and a light blanket. When Sean returned, he adjusted my head pillow and placed a pillow under my knees. Quiet music. Sean worked his magic as he worked my body into relaxation. Peaceful bliss. I felt pampered and happy. When I was diagnosed …