All posts tagged: Blogging 101

New Book and cannabis report

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I finally finished my book. I published it as a Kindle book. An adventure. A romance. Science fiction.  Matilda Finnegan meets up with an old acquaintance . A handsome six foot white hair, sexy  blue-green eyes charming man. Romance blooms. Adventure beckons. The story is about outcasts from a nearby planet finding refuge on Earth. Their obstacles and their romances.  Book website, Matilda and her Alien and place to buy,  Amazon Book site I have known about my rheumatoid arthritis for about eleven and a half years. A little more. Despite Kevzara, steroids and cannabis, I still have a week long severe flare at least once a month. The flares are bad. Most of the moveable joints in my body are affected. All but my knees. Strange ads that seems. However, flares  are still better than what they were. The inflammation  is reduced. My RA seems to simmer the rest of the time. Not good but better than it was. I am on the last biologic left to me. I either have tried them or …

A book of fiction and fun

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I am in the process of writing my first novel. It is called Matilda and her Alien. Matilda owns a bookstore. One day a man mysteriously appears in her store to say that he is an alien,  she is an alien, and they are at risk of being murdered, by men from another planet. It is fairly easy to believe him. Bertrand. Handsome. Charming. Twinkling blue eyes. Then , of course, she had met him years ago.  Their adventures span the globe as well as nearby planets. There are many colorful characters. Ahmed, Baghdad interpreter, Dr John, a South African trauma surgeon, Isabella, the Santa Fe psychic, and places like Solana, Granville, Albuquerque and Minnesota. Will they be able to save their fellow mutant BlueStone from slave labor and death? I am having a lot of fun writing this book. It is a lot more fun to write than non-fiction. I continue on the biologic, Kevzara, for my RA, plus low dose Medrol (6mg daily). I can take more of the Medrol when I have flares. …

Writing and RA

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About six months ago I fell into a writer’s block. I could not read another article on rheumatoid arthritis or write another article about living with it  I continued to read my Danial Silva novels, and as time passed I let Bob, my sourdough starter, pass into sourdough heaven. Who knows why what did happen. But I changed. Yes, I did. I watched the world series with my son. I was totally amazed at how unpredictable a game of baseball played out. It was fun. I love the Phillies. I joined my son and became a Phillies fan. We watch all the Phillies games that we can. I know all the players. Bryce Harper, first base, JT catcher, Bohm and home runs. All the players are great. Last night’s game was exciting. The Phillies were behind. Bohm finally  tied the game and Castellanos made the winning play in the tenth inning. Wow! Seven years ago I wrote a  10,000 word start to a novel. I put it away. I decided to take another look at …

RA, as time passes.

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My RA is different now than it was in earlier years. Now I feel like I am in a continual flare with variations. Sometimes worse. Sometimes much worse.  And luckily, sometimes better.  Today it is worse. I take tramadol and add 500mg ibuprofen. I take an extra Medrol. The amount of cannabis that I tolerate is improving and does help most days. I am very conservative. My primary orders the tramadol. Tramadol is a weak, synthetic opioid. It helps me but doesn’t help every RA sufferer.  My rheumatologist has agreed to my Medrol regime. I feel low dose ibuprofen helps inflammation as does cannabis. My son made pancakes this morning. Excellent. Cheered me up. Yesterday we went to Sprouts to buy a turkey breast. I am struggling with losing my sight. I take the AREDS 2 vitamins that help slow eye disease and I take moisturizing eye drops to keep them moist. I wear sunglasses when I go out. We have had the balloon fiesta, Halloween, and Elections. Next is Thanksgiving, peppered with birthdays. Then …

Ballgames and a PET scan

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We are busy watching the Phillies playing the Arizona Razorbacks. We loved the first game and then the next was 10 zip in favor of the Phillies. Fun. Now they have moved to Arizona to play three games. They lost the first two. Tonight is the third game. Instead of our movie we are watching the game. We will get takeout and hope for the best. Anyway, the games have been excellent in spite of the winner. Yesterday I had a PET body scan to see if the melanoma had metastasized. The tech injected a radioactive tracer intravenously. The tracer is attracted  to the activity of cancer cells and will cluster in them. It was a two hour process.  I had to wait an hour while the radioactive substance saturated my cells before the scan was done. Now the hard part. I could say the not knowing was no problem. It wouldn’t be correct. If I am cancer free, I will be thrilled. If I am not, I will have an uncertain future. Melanoma  can …

A Good Week

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Life has been good. I had a special treat recently. I had my youngest son all to my self for a day. Growing new memories. He has  returned  to his home in Texas. The weather has suddenly turned cooler. And I have suddenly settled into one of my worst flares of late.  It is amazing how that works. Doing fine. Then suddenly not doing  fine.  I took extra indica cannabis last night. I needed the extra help sleeping as I was on the front end of a flare. The night before I had taken extra Medrol. I still woke up this morning in total pain. My hands burned and ached. My shoulders hurt. All my joints  chirped in and I felt sick all over. I had to keep moving as I had a morning appointment with my primary. I poured water into the  coffee machine and added coffee. Next I let Francis out. The NYTimes and coffee were not enough to sort myself out. I went to the appointment holding on to my son. Audrey …