All posts filed under: RA journal

RA in New Mexico

I have Rheumatoid Arthritis in New Mexico. Are there advantages to living in New Mexico with RA? Sure there are. The climate is high desert and very dry. Humidity is tough for many situations. It is frequently hard on the joints.   Less humidity is a good thing. Another one. New Mexico is sunny. Our brains love light. Light helps to keep us happy. RAers need happy help. Sunflowers are like happy pills. They make us smile. New Mexico is a good place to have RA.

Mary Man's RA Journal Icon

Disabling RA

One of the big pleasures I have is watching the full moon make its way up and over the mountain. I see it from my patio doors as I am making dinner. Lately, it not only is a big, full moon but also a beautiful, warm yellow. When I first see it, the moon  is just peering over the top edge of the mountain. Then it seems to sit on the edge of the mountain top just before continuing  its journey up into the night sky. A moment in time. I was thinking of good things to distract from the pain I have in my joints and the nagging fear in the back of my mind that I am becoming more disabled with each passing day. My RA was diagnosed seven years ago in January. Since then, I have had three cancers and a hip replacement. Most of that time I have been on methotrexate, mostly injectable. It has slowed the progress of the RA. It could be worse. I’ve been on almost all the …

How my hair came to fall out, more experiences with cancer treatment

I remember when I learned about my latest cancer (#3).I knew that once again my life would be consumed by all things cancer. After major comprehensive surgery (they took almost everything out), it was time to settle into chemotherapy. My oncologist, Sara Jordan, had explained the reasoning behind the treatment she proposed. Chemotherapy would be part two after surgery and before vaginal radiation. I figured she might be able to cure me which sounded appealing and worth the effort I would be expending. This picture shows my hair, but it was taken after surgery and before chemo. The chemo was to be a commonly used combination of Taxol and Carboplatin. Six sessions in 21-day cycles. Hair loss is definite and is estimated to be 2-3 weeks after initial infusion. This allows a little planning time. My hair stylist, Audrey, cut my hair into a short pixie. Much better than a butch or a clean shave. The second part of the plan was to shave it when it started falling out. About day 19 after the …

the joy of roses

Cancer Number Three and RA

  It is almost a month since I had a robotic radical hysterectomy and it has been four days since I had my first chemo. I feel pretty good all things considered. Additionally, a minor surgical procedure placed a power injectable SMART PORT under my skin connected to a catheter that was threaded into my jugular vein and down to my superior vena cava creating fast access to my body’s circulation.  It is not as bad as it sounds. Sloan Kettering has a PDF that explains the procedure. My skin has been tender, but the lidocaine ointment works and relieves the discomfort. My RA is complaining with all joints hurting morning and again evening time. Walking hurts my feet even though I have custom shoes and custom triple layer inserts.  I am glad I take methotrexate injections, Plaquenil and meloxicam. I take 6 mg Medrol and can boost the dose into a dose pack if needed. So far, I am holding steady. With RA I think it is important to move. Aerobics are nice but …

Cancer Surgery Number Three

My surgery is over, and after an overnight hospital stay I am safely home. The doctor took many things out of me and she biopsied the rest. My doctor is a GYN oncologist surgeon, Sara Jordan. She is amazing and couldn’t be better. She feels that my serous uterine cancer, a rare subset of endometrial cancer and known for recurring, needs to be treated aggressively. I completed the first step, surgery. Prepping for the surgery was a challenge. I was required to spend Mother’s Day on a clear liquid diet. Then on Monday I was reduced to NPO status even though surgery wasn’t until one pm. I was running on empty so when I approached my preop, well-padded bed, I was relieved to get in. Stripped down like a hijacked car, clothed in the traditional blue gown, IV successfully inserted, I was ready for surgery. OR nurse stopped in. Anesthesiologist checked in. Dr Jordan reviewed the surgery again and introduced me to the second surgeon. Time seemed to accelerate. It was five minutes past one …

My RA and CA and me

If it weren’t for the third cancer hanging over my head, I would be a very happy soul. As it is I am just a happy soul. My roses are blooming. This is their big month and they are not disappointing.  Gardening and puttering through the various chores of my household reminds me of my housewife days. Good days. I aspire to the Hobbit life. Mellow and satisfying. Life in my home. I attend warm water pool classes at the Presbyterian Healthcare facility on Eubank. It is a long drive, but the classes are worth it. A comprehensive and aerobic workout that is manageable in the pool but not on land. Yesterday, I suddenly had a severe pain in my pelvic area that ran down the inside of my leg. Something new. Scared me. I thought about getting out but decided to lower my exercise level and see if it would pass. It did. I am no stranger to pain, back pain, joint pain and now this. Johnny Cash’s Peace in the Valley is sounding …

RA and Another Biopsy

Back to the hospital for another round with the medical community. When I had learned that I would need an endometrial biopsy for uterine changes due to the breast cancer drug Tamoxifen and a D&C due to polyps, all I could think of was here we go again. I am six months out from a difficult hip replacement recovery. I am still recovering, stiff and sore. But I am in much better shape than I had been. I am in warm water therapy classes several times a week. My garden is a joy. Beautiful, productive and satisfying. My yard is home to rabbits, a squirrel, quail, roadrunner and a happy assortment of birds. By the end of the year I hope to be certified as a wildlife habitat by the National Wildlife Federation. My brain is finally working, and I am starting to write again. Then this. I had previously written a blog on getting more bad news. This really isn’t bad yet. I won’t know for another 10 days or so. Those with RA …

My Military family

This picture is one of few I have of my military career. It was a beginning. I am proud of my family’s service to our country. My dad was Army in WWII. My uncle was a bomber navigator. His plane was shot down over Africa and he was the only survivor. He was nursed back to health by Catholic nuns. Another uncle was stationed in Japan in the 50s. My brother was Air Force in the late 60s. I was an Air Force nurse during the same time frame. My children’s father was career Air Force. My son Steven was also career Air Force with several tours in Afghanistan. We were all proud to serve.