All posts filed under: small posts

My favorite RA Book

When I had a severe episode of RA in December 2012, I was in so much pain that coping day to day was my only focus. As the diagnosis of RA was made clear and treatment commenced, I had to learn as much as I could. I also needed to understand my situation. I turned to the best book I could ever recommend to someone who is new to RA. It is called The First Year Rheumatoid Arthritis by M E A McNeil The book explains a lot. And equally important it helps a person shape a healthy attitude toward  RA It helped me take charge of my illness in a healthy, positive manner. Another pain free day. I am in paradise!

Bring a picture to your rheumatologist

I have tried bringing a variety of pictures as visuals to explain my condition to my rheumatologist. I found this one on the Medscape website. The image seems to be thorough except that the hips are not circled. The hips are more often involved in older patients. I think it is wise to bring visuals. Doctors are good at guessing. Showing them helps you explain your situation and helps your doctor understand your situation.

What does ACR20 mean

    Have you ever thought about what the numbers mean when they say 50% ACR20 at 6 months? This simply says 50% of the group had a 20% response at 6 months. It means half improved by 20%.   The ACR improvement criteria includes ACR20, ACR50 and ACR70. Meaning, 20%, 50% and 70% improvement. Easily enough to understand. I was reviewing a research paper on Orencia. I will be having my 8th infusion on Thursday. I was wondering if it was being effective enough and if I should keep taking it. The article had a chart for clinical responses in controlled trials. I reviewed the column that said inadequate response to methotrexate (The reason for being on Orencia; I think my methotrexate response is 50%, but it is not enough for me.) A response of ACR20 3  months 62% 6  months 68% 12 months 73%   This means that at 3 months 62% of the patients had a 20% improvement This means that at 6 months 68% of the patients had a 20% improvement. …