All posts filed under: post2

I thought I was going bald, it was just the MTX

About six weeks ago, I started noticing my hair thinning. I thought it was odd because my dad had thick hair in his older years. I expected my hair would do the same. My hairdresser also noticed the thinning. It was real. Next, I started noticing bunches of hair on my comb. “My hair is falling out,” I thought. Right again. I quickly realized that it was the methotrexate (MTX). Hair loss only occurs in 1-3% of those on MTX. I have been on it for five years and the last three years I have been giving myself 25mg injections. It works for me. I am also on hydroxychloroquine (Plaquenil). Plaquenil can also cause hair loss. I started taking MTX every eight days instead of every seven. Every nine days starts an RA flare. I stick with the eight days. I also cut the Plaquenil to 200 mg daily from 400 mg daily. My hair is no longer falling out. However, my hair hasn’t grown since my last haircut. Unfortunately, it was the second worst …

Too old to have RA

Thank God for my rheumatologist. She has been supportive through thick or thin.  Originally, she said she thought I had Polymyalgia Rheumatica because of my age and shoulder involvement. I didn’t have it. I have elderly onset rheumatoid arthritis (EORA) which occurs in those over 60, frequently has an acute onset and includes shoulder involvement. My inflammatory markers at the time were sky high. That was me. I proceeded to become symmetrical and have  followed the classic RA pattern. I am also RF negative. My RA seems to confuse the other doctors that I have seen recently.  Some think I am just too old to have RA. Some think because my inflammatory markers are not elevated that my RA is under control. Some think I can’t have RA because I am RF negative. Many otherwise well informed doctors do  have outdated information about Rheumatoid Arthritis. I have sero-negative RA. My RA has never been under control although since my hip replacement I do feel better. My RA is under 5 years old. My feet are …

Gardening and RA

April is a great month for gardening in New Mexico. Sunny, 70’s. Roses blooming. Oklahoma Red bud a riot of color. I am enjoying every bit. This week I planted a Lady Banks rambler on my back fence. There have been times when I never thought I would be able to kneel and happily dig in garden dirt again. Right now I can and I am very happy. In the four years since I was diagnosed with RA, I have learned to modify activities of my life. In the garden I have a kneeling pad for my knees. I buy the smaller size plant so I don’t need to dig a bigger hole and don’t need to haul as much garden soil. I have learned not to buy more than one or two plants at a time. And most importantly, I will relax with a cup of coffee and a book as a rest when my planting is done. The Lady Banks Rose is white and luscious. This is an old rose that was originally brought …