All posts filed under: My personal experience

I have knowledge and ideas to share. I also have my very own experiences. These are those.

the joy of roses

RA flares without the biologics

I am living through my days without methotrexate. I am not on any of the biologics. Hydroxychloroquine is no help and has been set aside. At first, I felt left alone in the world without armor.  Would a flare become so severe that I would spiral down and down into total pain and immobility as I had in 2013? That was my fear. For years, a low level of pain humming in the background has kept me company. I have a degenerating spine. There are long fancy words for what has attacked my spine. Plainly said, I have a bad back. I could say I inherited it  from my dad. I am accustomed to pain. Now I have RA. Over the years I have learned to ignore the humming pain. However, there is a tipping point after the start of a flare where something needs to be done. As a flare starts  pain grows louder in the small joints in my feet. The rest of my feet ache. My left ankle develops sharp pain making …

At home with RA March 2020

We live in Albuquerque. Sunny day. Tomato plants outgrowing their nursery. Pantry is stocked as usual and our internet is dependable. Doctor appointments are via phone. Trips to the grocery store are carefully planned. There is no bread flour or other baking supplies on the grocery shelves. Eggs can be hard to get. There is no food in Amazon’s Pantry.  We are on lockdown. Yet we still count ourselves as lucky people. We do not have the virus. No one in our family has the virus. Francis, our little cockapoo , is healthy. Our pantry shelves are stocked. Our income, at this moment, is as it should be. Our home is safe. We are lucky. I have rheumatoid arthritis. Recently I had to stop taking my RA meds, methotrexate and hydroxychloroquine as  two of my cancer docs said to stop. I had developed necrotic, infected tissue from breast cancer radiation treatment. This infection  started in October. I had a partial mastectomy in December followed by a severe cellulitis. Now after months of treatment at the …

RA and the Bread Machine

In December I had the urge to make bread. It was the same urge that I had several years ago to start knitting. I knitted everyone a beanie, or a wrap or a special heart to say I cared.  I am still knitting. I am working on a blanket project that is over half done, a wrap for my Watertown, NY sister-in-law and a fluffy, bright red beanie for a friend. Now I am adding breadmaking to my list of activities. I researched bread machines on the internet. Found the one I liked, a two-pound Oster and added it to my wish list. Eventually, Amazon made me an offer that I couldn’t refuse. In December during my hip replacement recovery, I became the happy owner of an Oster bread machine. The bread is made in loaf form, has nine plus settings and produces perfect bread mostly by itself in a little over three hours. Along with the machine, I ordered The Bread Machine Cookbook by Donna Rathmell German. It was her first book and I …