All posts filed under: medium posts

Lockdown Update

We are still locked down. We go to Costco and to Smiths. We travel out with our masks and our hand sanitizers. Those we meet are friendly and have smiling eyes behind their masks. If a person depended on reading lips to understand another, they are currently out of luck. Who would have guessed? Certainly not last September. Life changes so quickly. My garden is winding down. The squirrels are fat and happy after eating my tomatoes. The roadrunner couple I saw having sex in my back yard now have healthy teenagers who are as aggressive about eating birds as their parents. Our quail population is booming. They love quail blocks and nest along side the squirrels on a little used side of my property. I make bread every couple of days. I have many recipes for rye bread, but rye flour is now unattainable. Not enough planted by the farmers for the current demand. I also make a lot of oatmeal bread. Lucky for me. I make my own buns for bratwurst. I also …

Seven year anniversary and infection

It was seven years ago this month. I was acutely ill with my first encounter of rheumatoid arthritis. My illness had not been given a name yet. A week before that I had seen the ER doc who started me on prednisone and who was  sending me to the rheumatologist that I would see in about another week. I had very little sleep. A few hours a night at most. I was in excruciating pain. Life was not good. I can look back with a sense of relief. I no longer have the kind of pain that made me think I had broken glass shards in my joints. It took several years after my diagnosis for my RA to settle down. I never went into remission. My inflammation has always simmered. Methotrexate was my base. I finally settled into 25 mg subq once a week. It helped. After a few years my pain was never quite the same as it was originally. My feet became central to my discomfort. Custom orthotics and Dr Comfort shoes …

Our core and why we need it

  Our core is our foundation. It is the stabilizer muscles. It links the upper body with the lower body. Our core  keeps us upright, agile, and able to perform all the daily tasks that constitute our lives. The core muscles are located in our trunk. Our core is a muscular corset that keeps our organs inside, our backs upright and our bodies able to do their job.  It lets us twist and bend.  A strong core will keep us in good shape as we age and when we are ill. With a strong core we are less likely to fall as we get older. We are less likely to have back problems. We use our core when we do housework and when we play golf. We use our core when we play with our children and when we have sex. The quality of our activity depends on our core. The core comprises groups of muscles with strange sounding names. The rectus abdominis, transverse abdominis; the obliques, front and side,  lower lats, erector spinae, running …

RA in New Mexico

I have Rheumatoid Arthritis in New Mexico. Are there advantages to living in New Mexico with RA? Sure there are. The climate is high desert and very dry. Humidity is tough for many situations. It is frequently hard on the joints.   Less humidity is a good thing. Another one. New Mexico is sunny. Our brains love light. Light helps to keep us happy. RAers need happy help. Sunflowers are like happy pills. They make us smile. New Mexico is a good place to have RA.

More About RA Drug Orencia

Orencia Abatacept Abatacept, trade name Orencia,  is a biologic medication for rheumatoid arthritis. Ads for it have been on tv.  It reduces the inflammation that causes some of the symptoms of RA. It is also used for adult psoriatic arthritis and juvenile idiopathic arthritis. Response to expect                                                                                                                     According to clinical trials of Orencia use, up to 75% of patients had a 20% improvement at six months . About 50% had up to a 50% improvement. About 13% had a 75% improvement. In these studies, methotrexate was also being given. Pill, shot or IV?                                                    …

Stronger with exercise

  October 2019 I am amazed that I feel so much better. It has been a gradual process, a yearlong process. Recovery from the treatment of a rare uterine cancer is long, discouraging at times and scary at others. I say scary because the fatigue and the use of a brain that seems murky and sluggish is not something I would want to live with permanently. My fear was that this mental and physical slowness might just be permanent. So, I am relieved, quietly jubilant. My spark has re-ignited and I feel alive again. I am now able to go to the gym without being worn out for the day. My legs are stronger. I am becoming sturdy. I am reading again. I just finished Educated by Tara Westover and thoroughly enjoyed it. Her evolution from a brain washed, isolated child into a creative, educated and accomplished woman is inspirational. In the last few months I have found a comfort zone in riding the recumbent bike for 45 minutes three times a week at Planet …

I’m Back

I have completed chemotherapy and I have completed radiation. At this point I think I am cured. It’s been a long year. I am grateful as I have friends who are not as fortunate. In addition to  being diagnosed with another cancer this year, my computer died. The new one arrived Friday. It is nice to be up and running again. My RA doc has moved on to the VA. She is going to be working on research projects as well as seeing patients. I have followed her as I am a Vet.  She is happy. She had spent several of her student years working at the VA and appreciates its culture. She has ordered Voltaren Gel for the pain I have in my feet. The pain is a problem for me when I go to bed. Voltaren is a topical gel of Diclofenac, an anti-inflammatory. It arrived this morning. I will let you know if it works for me. Albuquerque has been one of the cold spots in the nation. It’s been down to …

How my hair came to fall out, more experiences with cancer treatment

  I remember when I learned about my latest cancer (#3).I knew that once again my life would be consumed by all things cancer. After major comprehensive surgery (they took almost everything out), it was time to settle into chemotherapy. My oncologist, Sara Jordan, had explained the reasoning behind the treatment she proposed. Chemotherapy would be part two after surgery and before vaginal radiation. I figured she might be able to cure me which sounded appealing and worth the effort I would be expending. This picture shows my hair, but it was taken after surgery and before chemo. The chemo was to be a commonly used combination of Taxol and Carboplatin. Six sessions in 21-day cycles. Hair loss is definite and is estimated to be 2-3 weeks after initial infusion. This allows a little planning time. My hair stylist, Audrey, cut my hair into a short pixie. Much better than a butch or a clean shave. The second part of the plan was to shave it when it started falling out. About day 19 after …

the joy of roses

Cancer Number Three and RA

  It is almost a month since I had a robotic radical hysterectomy and it has been four days since I had my first chemo. I feel pretty good all things considered. Additionally, a minor surgical procedure placed a power injectable SMART PORT under my skin connected to a catheter that was threaded into my jugular vein and down to my superior vena cava creating fast access to my body’s circulation.  It is not as bad as it sounds. Sloan Kettering has a PDF that explains the procedure. My skin has been tender, but the lidocaine ointment works and relieves the discomfort. My RA is complaining with all joints hurting morning and again evening time. Walking hurts my feet even though I have custom shoes and custom triple layer inserts.  I am glad I take methotrexate injections, Plaquenil and meloxicam. I take 6 mg Medrol and can boost the dose into a dose pack if needed. So far, I am holding steady. With RA I think it is important to move. Aerobics are nice but …