All posts filed under: Journal

RA feet and orthotics

My RA started in my feet. About 20% of patients are introduced to RA via painful feet and about 95% of RA patients eventually do have feet involvement.  RA struck my poor feet first.  Diagnosis was slow as my primary doc, an internist, later said I was too old to have RA and that the pulses in my feet were strong so my feet were fine. Once I was diagnosed. Methotrexate (MTX) was my first RA drug. The dose was gradually increased until I reached the max of 25 mg/week.  I tolerated the nausea and diarrhea which eventually passed.  MTX helped me but by this time my feet were in a lot of pain and I walked with great difficulty. I was sent to a podiatrist who declared right off the bat that he didn’t do foot surgery for RA. Fine, I thought. I had read about the horrors of RA foot surgery and I wanted none of it. I did need to know what would help. He did three things for me. He ordered …

RA doctor visit

Here in sunny Albuquerque we are expecting the thermometer to hit 104 this week. It is that time of year where hanging out in the house is a good idea. 90 is livable but once it passes 92, it is just too hot. My son is keeping the garden watered so we won’t have any plants that succumb to heat stroke. I finally connected with my RA Doc.  After x-rays, blood work and an exam, she can see the excruciating pain that I am in. She is thinking hip replacement. Tomorrow I have an MRI. I have an appointment with an orthopedic surgeon early in July. In the mean time she ordered Percocet and said to call if I needed more. I guess this is the holding pattern until the next step is reached. I am amazed that the pain is so immobilizing. I am still trying to do some restorative yoga, but there is something not moving the way it should so I am going with forward bends and shower wall push ups. Maybe …

Being in a funk with RA

I have to admit I am in a place where the mind is willing but my RA body is not. I have been living with extreme pain for a month and I have been trying to manage it myself.  Yoga, pain medicine on schedule, more medrol.  All for naught. I had sent an email via My Chart to my rheumatologist but I had no response.  It seems to be a situation where I have no choice but to call her.  Last I talked with her she was mad at me because I brought the statistics on Actemra to her. So asking her for help is a stretch. However, I have gone through my resources and they are not enough. So I will call. Living with chronic pain is bad enough. The worst of it is how immobilizing it is. My hip joints are deteriorating as is my spine. The worst of the pain is in my left hip and I bet it is where the sciatic nerve passes by the hip joint. I am okay …