Month: August 2013

I have cancer

The good news is my Rheumatoid Arthritis is doing much better as I settle into methotrexate/Plaquenil/meloxicam/prednisone combination. I am back to downward dog(my favorite in yoga). Thought I would never get there with my wrist involvement.  Sooo very happy to be there. The bad news is that I have thyroid cancer. At my age I’m not so lucky. Seems the best time to get it is between 17-45. Before and after those ages it can be very aggressive. I had a new spot on my chest x ray (January to April). Cat scan was done. Several spots plus spots on my thyroid. Echo was next. Even worse. Spot in my neck also. And after 39 sticks with needles guided by an echo, the diagnosis was confirmed. Standard treatment is to take the whole thyroid out. I see the surgeon tomorrow. I will probably have another echo of my neck lymph glands to see if the lymph glands need to go also. Wish me luck. Seems I need it.

Symptom Management

Lene Andersen wrote a book in 2013. It is called Your Life with Rheumatoid Arthritis.     She is amazing. Her RA started when she was 4 years old. She is now in her 40’s. RA was treated differently back then. By the time she was 17, she was wheelchair bound after having both hips replaced.  She struggled with her RA and she still has very big obstacles.  Her life isn’t an easy one. However. She has a Master’s Degree in Social Work. Then she adapted to work from home. She works with Health Central. She helps others with RA. Now she is an author. Her book is full of practical information on dealing with RA. It helped me. The cover reads ” Tools for Managing Treatment, side effects and pain”.  Pain management tool box, fatigue, fuzzy brain, osteoporosis, medication side effects, managing infection risk, nausea. This is a practical book with practical solutions. A good read. “I call it ‘Having a Swish.’  It means doing your best not to wallow in the self-pity pool. Every now and then …

sulfasalazine did not work

After a week on Sulfasalazine, I lived with constant nausea. Lost my appetite. Lived in a fog. Enough was enough! I stopped taking it and I do feel much better. Nausea is receding. The fog has lifted. I feel human again. This morning I did my yoga routine. Tonight I walked Jimmy, my 100# dog. I got a good days work in. Orders to lab, photographing a HS senior, setting up a new assignment, scheduling new appointments and on it goes. I am plowing through all the Eve Dallas series by Robb.  I am up to #14. About 20 plus more to go. It’s really like one book that keeps on going. Nice escapism. Dependable. I am still on the methotrexate and plaquenil and prednisone and meloxicam. Those I can tolerate. They do help me. There is a fine balance between RA symptoms and medication side effects. Thank goodness my balance is better.